Stephan Marinoiu, the frustrated father of a 15 year-old autistic boy, began a hunger strike outside the Legislative Assembly of Ontario at Queen’s Park last Sunday, May 4. Six days later, he’s still hanging in there, and although he’s reportedly beginning to show signs of weight loss, he appears to be in good health.
Marinoiu’s son Simon is one of an ever-growing number of children on the waiting list for a government program called Intensive Behavioural Intervention (IBI), designed to give autistic kids the social skills to lead a more normal life. The program, which provides 20-40 hours per week of one-on-one therapy, specially tweaked for each individual child, is incredibly effective and phenomenally expensive. And, with autism on the rise (the US Centre for Disease Control estimates that around 1 in 165 children are autistic, up from around 1 in 500 a decade ago), the waiting times are getting longer and longer. Some, like Simon, wait years for treatment.
Simon was denied access to the program because he reached the age cut-off for service while still on the waiting list. The age restriction has now been lifted, but researchers insist that for speech and behavioural therapy to make a real difference, it needs to start when the children are young. In his YouTube video, Stephan Marinoiu says that he is making a stand not just for his own struggle, but for all the children who stand to benefit from the IBI program.
Posted by Cate 